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Alzheimer's Association, Massachusetts/New Hampshire Chapter
Directory of Research Opportunities for People with Dementia and Their Families

An Introduction to the Directory of Research Opportunities for People with Dementia and Their Families

The Massachusetts/New Hampshire Chapter of the national Alzheimer's Association first published a Directory of Research Opportunities for People with Alzheimer's Disease and Their Families in 1992. The Directory is a listing of research studies open to volunteers. Subsequent editions included descriptions of more than 40 clinical studies in Massachusetts for which subjects were being recruited. These covered the range of dementia studies--on behavior, caregiving, diagnosis, Down syndrome and AD, drugs, genetics, normal aging, nutrition--as well as opportunities for tissue donation.

We are delighted to publish on these pages the latest edition of our Directory of Research Opportunities. The role of our Massachusetts/New Hampshire Chapter, through its Medical & Scientific Advisory Committee, is to educate the public about research, and to offer a connection between our Alzheimer families and specific research opportunities. We welcome the chance to work with local medical and scientific investigators in any way helpful to the thousands of Alzheimer families in our service area. Our goal is to empower families to make informed decisions.

Research of any kind involving human subjects must, by law, be approved by an independent committee made up of physicians, laypersons and others. All studies listed here received Institutional Review Board approvals from their respective institutional sponsors before being posted in our telephone Helpline office and on our Website. However, neither the Chapter's Medical & Scientific Advisory Committee nor the Alzheimer's Association can guarantee the safety or efficacy of any study. We urge you to call the contact listed for the study in which you are interested in order to get as much information as possible. You may also want to ask your primary care doctor about your decision to join a particular research study.

Should you choose to participate in a research study, we would be very interested in hearing about your experience. We need your candid feedback to help guide us in evaluating future listings. Please call, write, or e-mail your comments to our Committee staff, Nancy.Nichols@alz.org.

And please contact us if you need any additional information about participating in research studies, or any other information about Alzheimer's disease and related disorders, at:
     Alzheimer's Association, Massachusetts/New Hampshire Chapter
     311 Arsenal Street, Watertown, MA 02472
     Tel: 1-800-272-3900 Fax: 617-868-6720

We will be updating these listings regularly, adding new studies and deleting those which are no longer recruiting volunteers.

Thank you for your interest in advancing Alzheimer research.

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