Your browser does not have Javascript enabled. Javascript is required to view this site. Alzheimer's Association: Advocacy and Public Policy
  • Advocacy Day at the Mass. State House
  • New Hampshire Advocates in Concord
  • Coffee With Congress
  • Advocacy Forum in Washington
  • NH Gov. Hassen Signs the Universal Guardianship bill
Send a message now to your elected officials. It's easy. It's important.
Sign up as an Alzheimer's advocate. No one else can tell your story like you can.
Get 2017 DC Forum info here! You can take part at events across MA & NH. Be a volunteer advocate.
IN THE NEWS
FEDERAL
House Appropriations Committee approves a FY17 spending bill with a $350 million increase for Alzheimer's research at the National Institutes of Health. Senate Appropriations Committee bill would provide a $400 million increase in FY17.
MASSACHUSETTS
  • We were able to override the Governor's veto of $50,000 for an Alzheimer's Awareness Campaign (Budget Item 4513-1111). This will be a great way to collaborate with the state in spreading awareness and bolstering support.
  • NEW HAMPSHIRE
    On June 10, 2016 Gov. Hassen signed SB 487 to establish a Silver Alert-style program for missing vulnerable adults.


    Take Action
    Send a message now to your elected officials. It's easy. It's important. (New window with petition will open on click)

    New action items will be posted here
    Federal Priorities

    It's time to act. Public policy decisions must provide the resources necessary to support programs that affect people with Alzheimer's disease and their caregivers. Policymakers must enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day.


    Visit our national page for more details.

    Palliative and Hospice Care (PCHETA)

    Nearly half of all people with Alzheimer's and other dementias are in hospice care at the time of their death. Less than half of surveyed nursing homes have some sort of palliative care program. For people with advanced dementia, such care — which focuses on managing and easing symptoms, reducing pain and stress, and increasing comfort — improves quality of life, controls costs, and enhances patient and family satisfaction. But, as the demand for such care grows with the aging population, more must be done to ensure an adequately trained workforce. The Palliative Care and Hospice Education and Training Act would increase palliative care and hospice training for health care professionals, launch a national campaign to inform patients and families about the benefits of palliative care, and enhance research on improving the delivery of palliative care.

    Alzheimer's Research Funding
    Nearly 1 in 5 Medicare dollars is spent on a person with Alzheimer's

    On July 14, the House Appropriations Committee approved FY17 funding of $1.26 billion for Alzheimer's research at the National Institutes of Health, an increase of $350 million. This action follows the Senate Appropriations Committee budget of $1.39 billion, a $400 million increase. If passed by Congress, this would be the second year in a row federal funding hit a historic milestone.


    Health Outcomes, Planning and Education (HOPE)
    Health Outcomes Planning and Education

    It is crucial that those battling Alzheimer's have access to diagnosis and care planning services which can lead to better outcomes for themselves, their families and their caregivers. That is why the Alzheimer's Association supports passage of the Health Outcomes, Planning and Education (HOPE) for Alzheimer's Act. The HOPE for Alzheimer's Act (S. 857/H.R. 1559) is legislation that would:

    • Provide Medicare coverage for comprehensive care planning services following a dementia diagnosis; the services would be available to both the diagnosed individual and his/her caregiver.
    • Ensure that documentation of a dementia diagnosis and any care planning provided is included in an individual’s medical record.
    • Require the Department of Health and Human Services to educate providers about the new benefit and to identify any barriers individuals face in accessing care planning.

    Who supports the HOPE for Alzheimer's Act? Thousands of advocates nationwide have contacted Congress to urge passage of this bill, and the Alzheimer's Association has worked to ensure that the bill has bipartisan support from members of Congress.

    State Priorities
    Massachusetts Priorities

    Mass. Legislature has concluded current session. New legislation will be posted here when ready.

    New Hampshire Priorities

    New legislation will be posted here when ready.

    Advocacy Resources



    Contact Us
    For more information concerning our advocacy efforts, please contact:
    Daniel Zotos, Director of Public Policy dzotos@alz.org

    In New Hampshire:
    Heather Carroll, Manager of Public Policy hcarroll@alz.org
    Action Day at Mass. Statehouse
    ALZHEIMER'S ADVOCACY DAY
    Stand up. Speak out. Share your story.
    In The News
     
    Events
    '

    Registration for the 2017 Alzheimer's Association Annual Advocacy Forum is now open. The Alzheimer's Association Advocacy Forum is the nation's premier Alzheimer's disease advocacy event. Join more than 1,000 advocates in Washington, D.C. to advocate for research, and care and support services. Because of your support we’ve had two consecutive years of historic funding increases at the National Institutes of Health for Alzheimer’s disease research funding. It's where you need to be to continue playing a crucial role in the fight against the disease.

    Join Us in Washington:
    March 27-29, 2017, Washington Marriott Wardman Park, 2660 Woodley Rd NW, Washington, DC 20008

    To Register:
    Go to alz.org/forum/overview.asp and click the Registration tab.

    Here's a sample of what the Advocacy Forum is like:


    For more information , please contact:
    Daniel Zotos, Director of Public Policy dzotos@alz.org

    In New Hampshire:
    Heather Carroll, Manager of Public Policy hcarroll@alz.org

    Alzheimer's Association MA/NH Chapter Public Policy Manager Heather Carroll and advocates look on as Gov. Maggie Hassen signs the bill creating an improved alert system for 'New Hampshire's most vulnerable citizens'New Hampshire Governor Maggie Hassan joined Alzheimer's Association public policy manager Heather Carroll (left), other Alzheimer's Association advocates and legislators from both parties to sign Senate Bill 487 on June 10. The bill establishes a public notification system to broadcast information about missing vulnerable adults— specifically older adults with dementia or other cognitive impairments who may wander — in order to aid in their quick recovery. The program will provide for coordinating searches with local media, first responders, caregivers and families.

    The legislation builds on the bipartisan bill that the Governor signed in 2014 to establish a permanent subcommittee of Health and Human Services Oversight Committee for Alzheimer's and other related dementias, to develop an education program around Alzheimer's and to provide additional training for the law enforcement community on the disease.

    For more information , please contact: Daniel Zotos, Director of Public Policy dzotos@alz.org In New Hampshire: Heather Carroll, Manager of Public Policy hcarroll@alz.org

    We sometimes have Coffee With Congress. You can be part of a group that meets with a local representative. Check back here, as we will post details here when a Coffee with Congress is scheduled.