Your browser does not have Javascript enabled. Javascript is required to view this site. Alzheimer's Association: Advocacy and Public Policy
  • Advocacy Day at the Mass. State House
  • New Hampshire Advocates in Concord
  • Coffee With Congress
  • Advocacy Forum in Washington
  • NH Gov. Hassen Signs the Universal Guardianship bill
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IN THE NEWS
FEDERAL
HOUSE AND SENATE PASS Omnibus Budget with $350M For Alzheimer's Research
MASSACHUSETTS
  • Continuing Medical Education Requirement for Physicians
  • Alzheimer's Training for Elder Protective Services Social Workers
  • Massachusetts Alzheimer's Project Act (S.1196 H.2057)
  • NEW HAMPSHIRE
    Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act PASSED -- New Hampshire is now the 41st state (plus the District of Columbia and Puerto Rico) to adopt UAGPPJA
    Take Action
    Send a message now to your elected officials. It's easy. It's important. (New window with petition will open on click)


    SUPPORT PHYSICIAN EDUCATION

    This bill (MA H.3384) would require that curriculum content about Alzheimer's and related dementia's be incorporated into physician continuing medical education programs which are required for the granting or renewal of licensure.

    TAKE ACTION NOW! (New window with petition will open on click)        Learn More

    SUPPORT ALZHEIMER'S CARE TRAINING FOR
    ELDER PROTECTIVE SERVICES SOCIAL WORKERS

    This bill (MA S.360 H.516) would establish regulations for minimum training standards for elder protective services social workers. The training will provide specific effective approaches to working with this population and help to prevent fraud and abuse.

    TAKE ACTION NOW! (New window with petition will open on click)       Learn More

    SUPPORT THE MASSACHUSETTS ALZHEIMER'S PROJECT ACT

    The Massachusetts Alzheimer's Project Act ( MA S.1196 H.2057 ) will create an office for Alzheimer's disease at the Executive Office of Human and Health Services to coordinate government efforts and ensure that appropriate resources are maximized and leveraged for the 120,000 individuals and their families who live with the challenges of this disease every day.

    TAKE ACTION NOW! (New window with petition will open on click)       Learn More

    SUPPORT A SILVER ALERT PROGRAM IN NEW HAMPSHIRE

    Silver Alert (No Bill Yet) is a public notification system used to broadcast information about missing persons — specifically older adults with dementia or other cognitive impairments who may wander — in order to aid in their quick recovery.A Silver Alert program will provide training for first responders and allow for coordinating searches with local media, first responders, caregivers and families.

    TAKE ACTION NOW! (New window with petition will open on click)       Learn More

    Federal Priorities

    It's time to act. Public policy decisions must provide the resources necessary to support programs that affect people with Alzheimer's disease and their caregivers. Policymakers must enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day.

    Past and Current Legislation We Support:       Visit our national page for more details.


    Alzheimer's Research Funding
    Nearly 1 in 5 Medicare dollars is spent on a person with Alzheimer's

    Congress has heard us! A budget bill in Congress includes an historic increase of $350 million per year in Alzheimer's research. PASSED!!

    TAKE ACTION NOW! (New window will open on click)       

    Health Outcomes, Planning and Education (HOPE)
    Health Outcomes Planning and Education

    It is crucial that those battling Alzheimer's have access to diagnosis and care planning services which can lead to better outcomes for themselves, their families and their caregivers. That is why the Alzheimer's Association supports passage of the Health Outcomes, Planning and Education (HOPE) for Alzheimer's Act. The HOPE for Alzheimer's Act (S. 857/H.R. 1559) is legislation that would:

    • Provide Medicare coverage for comprehensive care planning services following a dementia diagnosis; the services would be available to both the diagnosed individual and his/her caregiver.
    • Ensure that documentation of a dementia diagnosis and any care planning provided is included in an individual’s medical record.
    • Require the Department of Health and Human Services to educate providers about the new benefit and to identify any barriers individuals face in accessing care planning.

    Who supports the HOPE for Alzheimer's Act? Thousands of advocates nationwide have contacted Congress to urge passage of this bill, and the Alzheimer's Association has worked to ensure that the bill has bipartisan support from members of Congress.

    National Alzheimer's Project Act (NAPA)
    National Alzheimer's Project Act

    The National Alzheimer's Project Act (NAPA) is the largest legislative victory in many years for the Alzheimer's cause, a law that established an integrated national plan to overcome the disease.

    NAPA includes requirements to:

    • Coordinate Alzheimer's disease research and services across all federal agencies.
    • Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer's disease.
    • Improve early diagnosis and coordination of care and treatment of Alzheimer's disease.
    • Improve outcomes for ethnic and racial minority populations that are at higher risk for Alzheimer's disease.
    • Coordinate with international bodies to fight Alzheimer's globally.

    NAPA will:

    • Increase the commitment to Alzheimer's research There continues to be a chronic underinvestment in Alzheimer's disease research. Providing resources to support the national plan is vital to finding needed treatments, developing prevention tools, and – one day – a cure.
    • Expand education efforts and caregiver support services. In addition to the need to increase public awareness of Alzheimer's disease, it is critical that unpaid family caregivers and health care providers receive education, outreach and support. NAPA also establishes the Advisory Council on Alzheimer's Research, Care, and Services and requires the Secretary of the U.S. Department of Health and Human Services (HHS) to work in collaboration with the Advisory Council to create and maintain the national plan.

    State Priorities
    Massachusetts Priorities

    These are our legislative priorities, please help us achieve these by contacting your state legislator and encourage them to support our priorities:

    • Continuing Medical Education Requirement for Physicians (H.3384)
      Today, at least 50% of Americans with Alzheimer’s are not diagnosed and of those who are, only 45% are aware of their diagnosis, creating an enormous obstacle for care of people with this disease. This is a critical problem because early diagnosis can help the person with Alzheimer’s and their caregivers receive appropriate treatment and support, helping them live a safer, more satisfying life and potentially slowing disease progression. The physician is in a unique position to identify early warning signs of Alzheimer’s/dementia, and must be aware of the benefits of informing patients of their diagnosis. This bill would require that curriculum content about Alzheimer’s and related dementias be incorporated into physician continuing medical education programs which are required for the granting or renewal of licensure.   Sponsors: Representative Paul McMurtry
      Get Current Details
      October 19, 2015
      H 3384            An Act requiring physician training on Alzheimer's and dementia

      Introduced:      January 20, 2015

      Last Action:     Referred to the committee on Consumer Protection and Professional Licensure on October 19, 2015    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    • Alzheimer's Training for Elder Protective Services Social Workers (S.360 H.516)
      Elders with Alzheimer's and dementia are at greater risk for neglect and abuse—financial, physical and emotional. This bill would establish regulations for minimum training standards for elder protective services social workers. The bill extends training to these workers who are on the front line of protecting the most volunterable elders. This legislation is the result of recommendations from the Elder Protective Services Special Commission Report, which identified a number of ways to improve elder protective services in Massachusetts.   Sponsors: Sen. Patricia Jehlen, Rep. Paul Brodeur
      Get Current Details
      December 10, 2015
      S 360            An Act relative to training of elder services workers in dementia and Alzheimer’s

      Introduced:      April 15, 2015

      Last Action:     Referred to the committee on Elder Affairs on December 10, 2015    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    • Massachusetts Alzheimer's Project Act (S.1196 H.2057)
      There are more than 120,000 people in our state with Alzheimer's disease, and that number is growing. On the current trajectory, Massachusetts will see a 25 percent increase in the number of people with Alzheimer's disease over the next decade, with an estimated 150,000 people having Alzheimer's by 2015. This bill would create an office for Alzheimer's disease at EOHHS to coordinate government efforts and ensure that appropriate resources are maximized and leveraged.    Sponsors: Sen. Michael Moore, Rep. John Scibak
      Get Current Details
      August 6, 2015
      H 2057            An Act relative to the Massachusetts Alzheimer’s Project

      Introduced:      January 20, 2015

      Last Action:     Referred to the committee on Public Health on August 6, 2015    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    New Hampshire Priorities
    • Silver Alert Program in New Hampshire (No Bill Yet)
      A Silver Alert program will provide training for first responders and allow for coordinating searches with local media, first responders, caregivers and families. Silver Alerts use a variety of media outlets such as radio stations and television stations as well as state and local government emergency notification systems, to broadcast information about missing older adults and notify nearby residents of the neighborhood surrounding the missing person's last known location. Please support the implementation of a Silver Alert program in New Hampshire.
    Advocacy Resources
    Contact Us
    For more information concerning our advocacy efforts, please contact:
    Massachusetts:
    Austin Hodge
    ahodge@alz.org

    New Hampshire:
    Heather Carroll
    hcarroll@alz.org
    Public Policy
     
    Alzheimer's: 2016 Stars in New Hampshire
    International and national spotlights will be on New Hampshire from now through Tuesday, February 9, 2016 for the New Hampshire Primary. This gives us a unique opportunity to demonstrate how thousands are affected by Alzheimer’s in New Hampshire alone, while demanding action from presidential candidates. In doing so, we will bring Alzheimer’s disease to the forefront of the healthcare debate and make it a key issue in the 2016 road to the White House.
    We are growing a movement across New Hampshire with advocates sharing their stories with the presidential candidates, the media, and circulating our petition. When presidential candidates travel around New Hampshire we want them to be thinking about Alzheimer’s disease and how their presidencies could directly impact the goal of finding a treatment or cure by 2025. Ultimately, we want to know what each candidate will do to commit their administrations to ending Alzheimer's if elected.
    YOU CAN JOIN OUR EFFORTS BY:
    Send a message now to your elected officials. It's easy. It's important.
    Sign up as an Alzheimer's advocate. No one else can tell your story like you can.
    Attend candidate events and share your story.

    OUR EARLY SUCCESSES:
    In The News
     
    Events
    Join us in our nation's capital for the 2016 Alzheimer's Association Advocacy Forum!

    Held annually, the Alzheimer's Association Advocacy Forum is the nation’s premier Alzheimer's disease public policy event. At the Alzheimer's Association Advocacy Forum, you'll work with other dedicated advocates to urge members of Congress to improve the lives of those already living with dementia, and to provide the funding to achieve the National Alzheimer's Plan goal to prevent and effectively treat Alzheimer’s by 2025 while there's still time.

    April 4-6 2016 - Washington Marriott Wardman Park, Washington DC

    Scholarships available
    – Scholarships are available for those who need financial assistance making the trip down to Washington DC. The application period is now through the end of January 2016.   Apply now!

    Registration open now! – Visit alz.org/forum

    Held annually, the Alzheimer’s Association Advocacy Forum is the nation’s premier Alzheimer’s disease public policy event. Here's what it is like to attend:


    We sometimes have Coffee With Congress. You can be part of a group that meets with a local representative. Check back here, as we will post details here when a Coffee with Congress is scheduled.