Your browser does not have Javascript enabled. Javascript is required to view this site. Alzheimer's Association: Advocacy and Public Policy
  • Advocacy Day at the Mass. State House
  • New Hampshire Advocates in Concord
  • Coffee With Congress
  • Advocacy Forum in Washington
  • NH Gov. Hassen Signs the Universal Guardianship bill
Send a message now to your elected officials. It's easy. It's important.
Sign up as an Alzheimer's advocate. No one else can tell your story like you can.
You can take part at events across MA & NH. Be a volunteer advocate.
IN THE NEWS
FEDERAL
Senate Appropriations Committee has reported the Labor-HHS- Ed bill, which includes $1.39 billion for Alzheimer's reseearch at the National Institutes of Health, a $400 million increase.
MASSACHUSETTS
  • Continuing Medical Education Requirement for Physicians
  • Alzheimer's Training for Elder Protective Services Social Workers
  • Massachusetts Alzheimer's Project Act (S.1196 H.2057)
  • NEW HAMPSHIRE
    On June 10, 2016 Gov. Hassen signed SB 487 to establish a Silver Alert-style program for missing vulnerable adults.


    Take Action
    Send a message now to your elected officials. It's easy. It's important. (New window with petition will open on click)


    SUPPORT PHYSICIAN EDUCATION

    This bill (MA S.1196 H.3384) would require that curriculum content about Alzheimer's and related dementia's be incorporated into physician continuing medical education programs which are required for the granting or renewal of licensure.

    TAKE ACTION NOW! (New window with petition will open on click)        Learn More

    SUPPORT ALZHEIMER'S CARE TRAINING FOR
    ELDER PROTECTIVE SERVICES SOCIAL WORKERS

    This bill (MA S.360 H.516) would establish regulations for minimum training standards for elder protective services social workers. The training will provide specific effective approaches to working with this population and help to prevent fraud and abuse.

    TAKE ACTION NOW! (New window with petition will open on click)       Learn More

    SUPPORT THE MASSACHUSETTS ALZHEIMER'S PROJECT ACT

    The Massachusetts Alzheimer's Project Act ( MA S.1196 H.2057 ) will create an office for Alzheimer's disease at the Executive Office of Human and Health Services to coordinate government efforts and ensure that appropriate resources are maximized and leveraged for the 120,000 individuals and their families who live with the challenges of this disease every day.

    TAKE ACTION NOW! (New window with petition will open on click)       Learn More

    Federal Priorities

    It's time to act. Public policy decisions must provide the resources necessary to support programs that affect people with Alzheimer's disease and their caregivers. Policymakers must enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day.

    Past and Current Legislation We Support:       Visit our national page for more details.


    Alzheimer's Research Funding
    Nearly 1 in 5 Medicare dollars is spent on a person with Alzheimer's

    Senate Appropriations Committee has reported the Labor-HHS- Ed bill, which includes $1.39 billion for Alzheimer's research at the National Institutes of Health, a $400 million increase. If passed by Congress, this would be the second year in a row federal funding hit a historic milestone.

    TAKE ACTION NOW! (New window will open on click)       

    Health Outcomes, Planning and Education (HOPE)
    Health Outcomes Planning and Education

    UPDATE 6/9:This bill has now been incorporated by the Senate Appropriations Committee into the funding bill for Labor-HHS-Ed reported out to the full Senate. It is crucial that those battling Alzheimer's have access to diagnosis and care planning services which can lead to better outcomes for themselves, their families and their caregivers. That is why the Alzheimer's Association supports passage of the Health Outcomes, Planning and Education (HOPE) for Alzheimer's Act. The HOPE for Alzheimer's Act (S. 857/H.R. 1559) is legislation that would:

    • Provide Medicare coverage for comprehensive care planning services following a dementia diagnosis; the services would be available to both the diagnosed individual and his/her caregiver.
    • Ensure that documentation of a dementia diagnosis and any care planning provided is included in an individual’s medical record.
    • Require the Department of Health and Human Services to educate providers about the new benefit and to identify any barriers individuals face in accessing care planning.

    Who supports the HOPE for Alzheimer's Act? Thousands of advocates nationwide have contacted Congress to urge passage of this bill, and the Alzheimer's Association has worked to ensure that the bill has bipartisan support from members of Congress.

    National Alzheimer's Project Act (NAPA)
    National Alzheimer's Project Act

    The National Alzheimer's Project Act (NAPA) is the largest legislative victory in many years for the Alzheimer's cause, a law that established an integrated national plan to overcome the disease.

    NAPA includes requirements to:

    • Coordinate Alzheimer's disease research and services across all federal agencies.
    • Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer's disease.
    • Improve early diagnosis and coordination of care and treatment of Alzheimer's disease.
    • Improve outcomes for ethnic and racial minority populations that are at higher risk for Alzheimer's disease.
    • Coordinate with international bodies to fight Alzheimer's globally.

    NAPA will:

    • Increase the commitment to Alzheimer's research There continues to be a chronic underinvestment in Alzheimer's disease research. Providing resources to support the national plan is vital to finding needed treatments, developing prevention tools, and – one day – a cure.
    • Expand education efforts and caregiver support services. In addition to the need to increase public awareness of Alzheimer's disease, it is critical that unpaid family caregivers and health care providers receive education, outreach and support. NAPA also establishes the Advisory Council on Alzheimer's Research, Care, and Services and requires the Secretary of the U.S. Department of Health and Human Services (HHS) to work in collaboration with the Advisory Council to create and maintain the national plan.

    State Priorities
    Massachusetts Priorities

    These are our legislative priorities, please help us achieve these by contacting your state legislator and encourage them to support our priorities:

    • Continuing Medical Education Requirement for Physicians (H.3384)
      Today, at least 50% of Americans with Alzheimer’s are not diagnosed and of those who are, only 45% are aware of their diagnosis, creating an enormous obstacle for care of people with this disease. This is a critical problem because early diagnosis can help the person with Alzheimer’s and their caregivers receive appropriate treatment and support, helping them live a safer, more satisfying life and potentially slowing disease progression. The physician is in a unique position to identify early warning signs of Alzheimer’s/dementia, and must be aware of the benefits of informing patients of their diagnosis. This bill would require that curriculum content about Alzheimer’s and related dementias be incorporated into physician continuing medical education programs which are required for the granting or renewal of licensure.   Sponsors: Representative Paul McMurtry
      Get Current Details
      May 5, 2016
      H 3384            An Act requiring physician training on Alzheimer's and dementia

      Introduced:      January 20, 2015

      Last Action:     Referred to the committee on Consumer Protection and Professional Licensure on May 5, 2016    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    • Alzheimer's Training for Elder Protective Services Social Workers (S.360 H.516)
      Elders with Alzheimer's and dementia are at greater risk for neglect and abuse—financial, physical and emotional. This bill would establish regulations for minimum training standards for elder protective services social workers. The bill extends training to these workers who are on the front line of protecting the most vulnerable elders. This legislation is the result of recommendations from the Elder Protective Services Special Commission Report, which identified a number of ways to improve elder protective services in Massachusetts.   Sponsors: Sen. Patricia Jehlen, Rep. Paul Brodeur
      Get Current Details
      June 23, 2016
      S 360            An Act relative to training of elder services workers in dementia and Alzheimer’s

      Introduced:      April 15, 2015

      Last Action:     Referred to the committee on Elder Affairs on June 23, 2016    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    • Massachusetts Alzheimer's Project Act (S.1196 H.2057)
      There are more than 120,000 people in our state with Alzheimer's disease, and that number is growing. On the current trajectory, Massachusetts will see a 25 percent increase in the number of people with Alzheimer's disease over the next decade, with an estimated 150,000 people having Alzheimer's by 2015. This bill would create an office for Alzheimer's disease at EOHHS to coordinate government efforts and ensure that appropriate resources are maximized and leveraged.    Sponsors: Sen. Michael Moore, Rep. John Scibak
      Get Current Details
      August 6, 2015
      H 2057            An Act relative to the Massachusetts Alzheimer’s Project

      Introduced:      January 20, 2015

      Last Action:     Referred to the committee on Public Health on August 6, 2015    
      Download a copy of this bill
                  Take Action

      Powered by Open States, a project of the Sunlight Foundation.


    New Hampshire Priorities
    • Silver Alert Program in New Hampshire
      On June 10, 2016 Gov. Hassen signed SB 487 to establish a Silver Alert-style program for missing vulnerable adults. More details in the Events section.
    Advocacy Resources



    Contact Us
    For more information concerning our advocacy efforts, please contact:
    Heather Carroll, Manager of Public Policy hcarroll@alz.org
    Action Day at Mass. Statehouse
    ALZHEIMER'S ADVOCACY DAY
    Stand up. Speak out. Share your story.
    In The News
     
    Events
    Alzheimer's Association MA/NH Chapter Public Policy Manager Heather Carroll and advocates look on as Gov. Maggie Hassen signs the bill creating an improved alert system for 'New Hampshire's most vulnerable citizens'New Hampshire Governor Maggie Hassan joined Alzheimer's Association public policy manager Heather Carroll (left), other Alzheimer's Association advocates and legislators from both parties to sign Senate Bill 487 on June 10. The bill establishes a public notification system to broadcast information about missing vulnerable adults— specifically older adults with dementia or other cognitive impairments who may wander — in order to aid in their quick recovery. The program will provide for coordinating searches with local media, first responders, caregivers and families.

    The legislation builds on the bipartisan bill that the Governor signed in 2014 to establish a permanent subcommittee of Health and Human Services Oversight Committee for Alzheimer's and other related dementias, to develop an education program around Alzheimer's and to provide additional training for the law enforcement community on the disease.

    We sometimes have Coffee With Congress. You can be part of a group that meets with a local representative. Check back here, as we will post details here when a Coffee with Congress is scheduled.